Thursday, October 18, 2012

My legs don't work; my ears are fine (and other annoyances)

"You're such an inspiration!" 
Life in a wheelchair is life... but just in a wheelchair. Of course lots of things are more difficult. If the person who achieves mobility through the wheelchair used to be able-bodied, they obviously had some huge challenges to overcome. But the bottom line is - this is their life. That sounds simple, however it seems to be overlooked by many people.

When my friend with Spina Bifida is spoken to loudly and slowly, she looks up at the speaker and says "My legs don't work, but my ears are just fine."


My friend who is living with a Spinal Cord Injury says that many of the women with whom she works, who are also "in a chair", absolutely hate being told that they are an inspiration - especially by strangers. Imagine, being a wife and mother, shopping for groceries, in your wheelchair, and having a total stranger tell you that you are SUCH an inspiration... They call it the "I" word, as if it's almost a curse word. Think about it from her perspective. What exactly has she inspired you to do? Don't ignore her, but don't say something so empty of meaning. If you're looking for something to say, maybe you can say "Is there anything I can help you with?" She may need something on the top grocery shelf, and your offer would be gratefully received.

More on this tomorrow. Until then, may your eyes be open to the person, and not the chair.

6 comments:

  1. Ms Ruth, You've been on my mind lately. I haven't been online as much as I'd like. We've been swamped at my house and I'm feeling like I'm trying to catch up! About this blog: I have a wonderful friend - who from the time she was in a wheelchair. Her mom refused to let her act like that chair was anything other than her feet though. I am so proud to say that my friend helped change my perspective on wheelchairs forever. She'd say, "I can use some help - but not until I've tried it myself. And are you looking at my special round feet?'

    I'm looking forward to hearing from you! Take care, Arlene :)

    ReplyDelete
    Replies
    1. Hello Arlene! I'm back in the world of Caregiving now, so you'll see a lot more of me on here, and probably on the other site as well. I'm anxious to check in on your blog. I no longer work with the gentleman with ALS although we stay in touch. It's been almost one year. WOW. Time flies!!!!!!

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