Remember Martha? Private Martha who doesn't like her Caregivers butting into her business and calling her on physical problems?
She has suffered through quite a few surgeries and is actually very strong. Rarely takes pain medication.
A caregiver tried to lift her from the car by jerking on a gait belt. This caused quite a bit of pain in her ribs. I hate gait belts, mostly. But that's beside the point. The pain persisted. She mentioned it to me as we got ready for the morning.
When her home health care nurse was there looking at her abdominal wound, she asked "Do you have any pain anywhere?"
"No!" she says cheerfully.
ehhhh what? So I jump in, helpfully. "What about that pain along your ribcage that you pointed out to me this morning?"
Daggers from the recliner. Oooooo.
But the nurse checks it out and agrees it is an injury from the gait belt. I'm hoping Martha forgives me.
This is much the way any pain, bleeding, digestive upset, etc goes. But I follow my instincts and choose my battles wisely.
A gentle look into the world of in-home care, as the end of life approaches. Addressing issues common to care at home, including Dementia, Alzheimers, Incontinence, Sleep, Food Preparation, Mobility, Anticipatory Grief, Fear, ALS, and Dignity. Stop. Listen. Look into their eyes. They have much to teach. Loving and caring for them will enrich your life. Learning how to speak to them and care for them will enrich theirs.
Friday, March 9, 2012
Friday, February 24, 2012
When Caregivers go "too far"
I can speak only for myself, but I caregive because I care. Some of my clients have Dementia. My main client does not. I care deeply for them all, and hope to care for them at the level they both require and deserve. Here's the dilemma: How much care is too much?
Saturday, January 28, 2012
Another good resource
I endeavor to be the best caregiver I can be. To that end, I am always searching the Internet for resources. Here's one I found today. If you are caring for, living with, or know someone with Alzheimer's or Dementia, please check out this resource.
Here's the link: http://www.eldercareteam.com/public/599.cfm
Here's the link: http://www.eldercareteam.com/public/599.cfm
Friday, January 27, 2012
My Last Outing With The Colonel, Part Three
Ralph's willingness to accompany me into the store was huge, because there had been days it
had taken me more than five minutes just to wake him up to take
medication during the day, and he had been too weak to brush his own
teeth. He was uninterested in all of the routines of life, and found little pleasure in anything. That's why I was so surprised and pleased when he agreed to get on an electric cart and go into the store with me.
A
very nice young man assisted me by bringing the electric cart to the
car. I think he was curious to see this 90-year-old man I said was
waiting for us. We parked the cart right by his door, and out stepped
Ralph, gingerly making his way onto the electric shopping cart. His
assistant gave him a quick driving instruction, and off we went. He
would zip back and then stop suddenly, adjust, zip forward and stop
suddenly, and shout "HELLO!" if he saw anyone within 20
feet of him, on any side. Oh my goodness - this was going to be good.
Fresh
fruit and vegetables; our first stop. Lurch, lurch, slam. "What
are we doing?"
"Buying fruit, Ralph. What would you like?"
Zip,
lurch, slam. "I want some grapefruit. Pick out 4 or 5 nice
ones."
Bananas,
onions, celery, potatoes... he selected each with delight. Lurch,
lurch, slam "HELLOOOOOOO!" "Honey, I want
Instant Breakfast." "Yes, Ralph, we'll get there."
Meat
was next. A huge "SALE" sign caught his eye, and he decided
they had to have popcorn chicken. Popcorn chicken? Seriously? Ha ha.
Okay. One bag. Now on to the steak. "HELLOOOOOOOOOOOO!!!!!"
(two other customers in the meat department) Ziiiiiiiiiiiiiiiiiiiiiip
SLAM. Almost hit me.
The patient man working in the fish department
explained the price difference between the shrimp with tails on, and
without tails on. He also helped find the bacon, although I had
already shown Ralph where that was. Ralph absolutely loves
help. "Beeeep Beeep Beeeeep" as he backs up toward the
bacon and away from the shrimp. Lurch - SLAM.
OK. Now what? Ah,
yes, cheese and milk and eggs... Ralph is anxious now, and
feeling a little agitated about where things are. I, however, am
having an amazing and amusing time. We are quite the sight, and I'm
not unaware of this. I laugh a lot, and in the paper goods aisle,
Ralph smiles up at me and says "Give me a kiss, honey."
As
we go, Ralph's basket is getting more and more full. Soon he can't
really see over the top of everything. SMACK! He hit the empty cart
squarely, and it went flying up the aisle, coming to rest against a
display. The crowd parts to watch. He shouts at me "HONEY! You
have to clear the way for me!" Then, to the other customers
'HELLO! Coming through!" We get not one or two, but 8
large rolls of paper towels. An industrial pack of napkins. Laundry
soap, two kinds of bread, donuts, Instant Breakfast, milk, cheese...
and then, as suddenly as we started, he was simply done. Racing
toward the checkout, he collided with a hanging display along the
refrigerated section and dragged it 15 feet or so. This was my fault
for overloading his cart. I was having a blast, and he was just
determined. The irony of a retired USAF pilot driving this motorized
cart didn't escape me. We lurched and slammed our way to the check
out. He was sure, because he was in fact THE COLONEL, they'd let him
go in the Express lane. Not so, Sir! She apologized, but just didn't
have room for the cart full of groceries.
Eventually
we ended up with two young men, a full shopping cart, and Ralph on
the scooter, out at our car. The young men loaded the car, then
assisted getting the cart near the car, and stood by to help Ralph
into his seat. He ate this attention up like a Celebrity. As we
started to leave, he told me that we needed to hurry home so he could
"tee tee". To appreciate how funny this sounds, you'd have
to hear it in person. I patted his hand and thanked him for the best
adventure I'd had all week. It was now quarter after 7pm. Yes - two
and a half hours since we left the condo. I was very worried about
Martha, but I had called her twice with updates and I knew she was
delighted that Ralph was out and about having an adventure.
One
thing that is markedly different since he has hit his decline, is
that he rarely laughs anymore. He did smile, though, as we came
through the condo door to hurry to the potty. Ralph and Martha called
their "HELLOs" to each other, we got him all fixed up, and
then back in the wonderful lift chair. We re-counted our adventures
after I'd returned to the car to get all the groceries and supplies
out and back upstairs. It's a 5-story building, and the process of
bringing loads up is interesting. You take the elevator to the 1st
floor, which is under ground, and use a shopping cart to load up the
stuff and bring it up in the elevator, to your destination. You
actually bring the shopping cart right in the condo. It is hard to
get used to. But it is efficient!
Ralph was never again strong enough. In four short weeks, Ralph was gone. I will forever treasure my memory of this man, handsome right until the very end, maneuvering his electric cart through Safeway, shouting a warning to anyone within ear shot.
Thursday, January 26, 2012
My Last Outing With The Colonel, Part Two
Cash
in hand, Ralph requested that I go to RiteAid and look for the needed
incontinence supplies. I did, leaving him in the car. He went into a
coughing fit and I had to run back into the store and get bottled
water for him. Disaster averted, we were soon on our way.
"Don't
you need to go to the grocery store?" Ralph asked. "Yes - I
thought I'd take you home and then go shopping."
"I
want to go."
"You want to go... to the store? Do you feel
strong enough?"
"Yes.
I'll sit in the car and listen to the radio. It's as comfortable as
being at home and I'm not ready to go home yet."
Hmmmm.
I thought about the long list I'd been given and how long it would
take and how impatient the Colonel is.
We
pulled into the parking spot in the Safeway garage, and I thought
about it some more. It sounded like a really bad idea to leave this
man in the car, unsupervised, when he could go into a coughing and
choking fit* any time, or worse. So I said "Hey. How would you
like to try an electric cart, and come in with me?"
Surprise!
He said "OK!"
*In the weeks leading up to Ralph's death, he would often fall into a choking fit which would end in violent retching. It was horrible. I carried the monitor with me at all times, when not in the same room as Ralph
Wednesday, January 25, 2012
My Last Outing With The Colonel
Part One. The story takes place in January, 2011. Almost exactly one year ago. Remembering this story warms and breaks my heart at the same time. I will tell it in several parts, as it is a long story.
"We
won't discuss Thursday. Thursday was one of those days that seemed to
have no end and was so full of stress and pressure I felt my temples
pounding. There are bound to be days like that, but I will be forever
grateful if they're few and far between. Suffice it to say, I was
treated as if I were just slightly less than a servant with no brain
- ALL DAY. Then came Friday. Friday found the Colonel deeply
apologetic over how I was treated on Thursday. With frequent tears,
and sincere hand grasps, he expressed sorrow over and over, and
really tried to be more pleasant. I don't know what changed between
Tuesday and Thursday, but the renewed strength and stamina had all of
us amazed. He was able to transfer in and out of his chair,
wheelchair, bed, commode... exceptionally well. He ate, drank,
talked, and didn't sleep the days away. I guess we will have some
"up" days mixed in among the down...
Tuesday, January 24, 2012
Can an 89-year-old run?
Oh, yes. This is the father of a friend of mine. I met her through our wonderful Nutrition company. Her father is consuming this complete nutrition. Here's the video.
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